About Us

Meet our Trustees

Meet our Advisors

The ME Patient Foundation is an independent, research and evidence based, patient-centred charity, focused on improving the lives of all those living with Myalgic Encephalomyelitis (ME). We are built on a foundation of knowledge and lived experience with the aim of advancing biomedical research and education of the public and medical community.

We place particular importance on being an independent organisation free of any government or DWP (Department for Work and Pensions) involvement; supporting patients without conflicts of interest or subject to the influence of more powerful people or systems with vested interests.

For too long ME patients have been subject to stigma created by those who believe the illness is ‘all in the mind’. They hypothesise patients can recover through exercise and cognitive behavioural therapy which can result in the patient being blamed if they do not improve, as well as serious repercussions on their health, living standards, and quality of life.

The charity aims to challenge misconceptions and correct this widespread stigma and find the recognition and support patients deserve in living with a serious, debilitating and isolating illness.

Registered Charity 1181205